Beckett Update

Beckett has been doing well today. Doctors think he has severe laryngomalcia. They have given him a sedative in addition to some pain medication so he is sleeping easier and not fighting the breathing tube. They also have him on steroids because the acid reflux has made his airway so swollen which is what they think is causing his airway to close. They also think he might have soft cartilage in his throat so it doesn't keep his airway open as it should. Finally he is receiving Prevacid to ease the reflux.

The doctors are thinking about removing the breathing tube tonight or tomorrow to see how he does. He would first have to pass a squeeze test. Britt does not want it removed unless it can stay out since it causes pain and increases swelling each time its put in and out. Monday they are wanting to do another test where they use a camera to view his throat to make sure there are no problems there (soft spots, holes, or swelling). At this point their worst case scenario is having to have surgery where they put a stint of some sort in his throat.


**Update on Beckett. Today (Sunday) baby is looking much better. Late yesterday they finally got a feeding tube in and we think the milk has made a big difference. His color is looking better and his face is less swollen. They turned off the ventilator to see how he would breath on his own. The first time he lasted 25 minutes and the second 30 minutes before he quit breathing. They plan on doing a scope tomorrow.


**Beckett has been off of his ventilator for 12 hours now. He is doing well. They have taken him off milk until his bronchoscopy later today.


**Beckett had the scope done with surpraglottoplasy (trimming of the exra tissue causing blockage). He is back in the room waking and still has the airway out. The doctors are feeling good about expected improvement.